I tell you this story from the vantage point of having lived through several presidential administrations which I thought at the time were the worst that ever could be, only to be judged wrong by a new one which was exponentially more terrible. The current administration may be the absolute bottom of that rancid barrel, and possibly so bad that it could conceivably be the last one we see. Though of course, I might be wrong.
A week before Christmas 1988, in the darkest hours of the year, I made gingerbread cookies.
I rolled flat the ball of cold dough I had made on the floured cutting board. I was listening to The Band. Levon Helm.
The Weight. The Shape I’m In. His voice was a muddy truck on a rough upstate road. His dirt farmer voice pushing through the roadside brambles. Singing how he felt. How I felt. How we all felt. The shape we were in.
It had snowed three inches that week, and by that time forty thousand eight hundred forty-nine men women and children in the country had died of HIV/AIDS in the six years since we’d recognized that an epidemic had begun.
I set the oven at three-fifty, pressed a cookie cutter into the dough and peeled each figure apart and laying them flat and brown on the baking sheets. Dozens of them. Arms and legs outstretched.
With the edge of a spoon, I drew eyes and a smile into each face. A Greek chorus, now, of eager Athenians bearing citizen witness to the events to come.
The number of deaths, their constancy, the relentless procession of them, had become the landscape. The gestalt. The number itself was benumbing. A monochrome veil over your vision while you could still clearly see and feel the enormity of each passing; each life’s loss.
The constant cloud of death hung about us; about all of those I worked with. The dread of it stitched onto the edges of everything, even in the campy, offhand-sounding humor. We cared for the sick and scared, studied the data and the pathology, the science and medicine and the hopeful rumors of unlikely cures.
Reagan had long since shown himself to be the devil. He surely knew better. His friends were dying around him. Nevertheless, he acted as if he was simply callously clueless, when he was, demonstrably heartlessly uncaring and cruel.
Regan’s willful ignorance and inaction were incomprehensible. To what end, six years in, would he not lead the mobilization of medical care, research and compassion?
The gingerbread cookies would be my Christmas gift this year for our work group. We all made cookies to share. Tiny pecan pies, peppermint bark, buckeyes, and pfeffernüsse. We had no holiday party. There was no holiday. We’d exchange the boxes and bags and jars before leaving work on Christmas eve and be back the next day.
I took a step away from the counter and looked at the figures. Each one of them. Arms and legs outstretched. Their smiling faces.
A smile came to my own face, and grew slowly, and I began to laugh. It became a big, head-tipped-back, body laugh, reaching out to the corners of the kitchen .
It upwelled from deep within me. I was work- and world-weary and sleep-deprived and the laugh did me good.
Rolling out another ball of dough, I cut the next batch of figures and found myself pressing a downward frown into each of the remaining cookie faces. And, by the same magic that made me laugh, I felt a wave of sadness wash over me.
Tears filled my eyes, overflowing my cheeks and I cried as I could never remember doing. He cried for myself, and everyone and everything. For all of us. Our frustration and fear. Our sadness, our rebellion, and anger and our helplessness.
A skin-prickling sadness, not only for myself but for John and James, and Emily, Kim, Rosario, and Jonathan, and all the Johns and James and Emilys, and every other one of the friends we had lost. The faces of those he would never see again. The faces I’d seen for the last time, only days or weeks before, in a hospital bed or covered in soft blankets on their mother’s long couches, or settees in their own dark living rooms. Faces of those who died, as they seemed to do almost daily then, of cryptosporidiosis, or sarcoma, cryptococcal meningitis, wasting, fever, or pneumocystis pneumonia or a other diseases that ravaged them. And those for whom AZT promised a cure but only made the dying harder.
Friends I knew and did not know, younger than me, who’d relentlessly suffered and too-soon lost everything they had and loved and had surely dreamed. All of them who had not had the care they needed, the research they demanded, the recognition as humans in need which they deserved, because the president of the country they lived in could not abide helping them or funding the research that might save them, and could not, even as men and women he knew, died all around him, Reagan could not even speak the name of the disease they had.
When all the cookies were done, the smiling and the frowning, I bundled them, warm, together and wrapped them in white tissue paper and tied green and red ribbons around their waists. The house was quiet. I was exhausted. I was drained, and I most needed to sleep.
That was over forty years ago. We lived every day with the consequences of the government’s lack of action and human compassion, and its willingness, born out of ignorance, to discriminate and marginalize people based upon its own politics. It resulted in an early and painful death by an infectious disease for many thousands in the U.S. and millions worldwide.
Our experience with the COVID pandemic was taken from the same disastrous playbook. Politics, marginalization, discrimination, racism, and willful ignorance of public health practices resulted again in the death of tens of hundreds of thousands of men women and children.
Now, once more, politics, marginalization, discrimination, racism, willful ignorance, lack of human compassion, and a blatant disregard and disdain for the Constitution and the rule of law, is unfolding daily in full view. We can not yet know how many lives have been, and will be, sent into turmoil, hardship, disappearance, torture, illness, and possible death by a government sworn to follow the constitution and other laws, acting rightfully and impartially for the sake of the citizens and the society.